A little over two years ago, Erik Gelhar’s life was perfect. Just 23, he had a high-paying job as a merchant mariner that he loved. He had bought his first house. He had just met the woman who would later become his wife.Then the Bellingham resident started to feel “funny.” He couldn’t sleep, he felt anxious, and his chest felt tight.
It’s stress, he told himself. He had recently learned that his grandfather had prostate cancer, one of his friends had died, and another friend had been diagnosed with heart failure. It’s the excitement, he told himself, of buying a house and meeting a new woman.
“I was attributing all of these symptoms to life is crazy,” Gelhar said of that summer in 2007.
It grew crazier for the Bellingham High School graduate.
That August, doctors told him his heart was failing. Months later, he had to quit his job because he could no longer work.
Now Gelhar and those who love him are trying to raise $100,000 for an October medical procedure in Dusseldorf, Germany, in which stem cells from his own body will be used in the hope of stabilizing his heart and delaying a heart transplant for as long as possible.
The news was the latest twist for Gelhar and his wife, Jenn Johansen Gelhar, who had been dating just two weeks before his life took such a drastic turn — and destroyed his well-laid plans.
“It’s frustrating because I grew up trying to do the right thing. I knew what I wanted to do. I went to school and I did it. Two years ago this past summer, I was a different person. I had an identity as a merchant mariner, which I was proud of. I was stable,” Gelhar, 25, said. “It’s a massive loss for me. It’s hard to deal with.”
ENDINGS, NEW HOPE
Gelhar has been diagnosed with idiopathic dilated cardiomyopathy, which essentially means he has heart failure and doctors don’t know why.
A battery of tests performed by his cardiologist, Dr. Rajesh Bhola, of Peace Arch Cardiology in Bellingham, hasn’t pinpointed a cause. Heart-failure specialists at the Mayo Clinic in Rochester, Minn., couldn’t find the culprit. Neither could doctors at the University of Washington Medical Center, where Gelhar is being placed on the heart transplant list.
There’s nothing in his family’s history, Gelhar said. “We’re pretty robust people.”
He was, too, until July 2007, when his symptoms started to surface. In addition to not being able to sleep and feelings of tightness in his chest, he was pale and sweaty.
But he was young and reacted the way a young man would. He ignored it, at first.
“Somebody my age, I’ve got this Superman ‘S’ on my chest, I’m invincible,” he said.
Crackling sounds from his lungs and not being able to breathe finally sent him to the doctor some weeks later on Aug. 5. A chest X-ray showed that his heart was swollen and struggling to pump blood.
“It was a shock. What do you mean it’s your heart?” Jenn recalled, after getting a phone call from Gelhar.
Later that evening, Gelhar met Bhola for the first time. There was no small talk when the doctor came in. Bhola simply held Gelhar’s hand, told him that his heart function was at 20 percent and explained that his heart was failing.
Still, because he was young and healthy, the hope was that medication and rest would reduce the swelling in his heart. He thought he could go back to work that September. One month passed, then two. Five, then six. Echocardiograms, one after the other, showed no change.
On Bhola’s suggestion, Gelhar went to the Mayo Clinic that winter. Doctors there suggested a defibrillator, the size of a small cell phone, be inserted into his chest to shock his heart into normal rhythm in case he went into sudden cardiac arrest.
But that meant giving up his dream job as a marine engineer for Polar Tankers, a subsidiary of ConocoPhillips, in which he worked in the engine department and helped maintain the ships’ mechanical systems. He couldn’t be around high-voltage equipment with the defibrillator in his chest.
Saddened, Gelhar yielded.
Then he went on with a life where he can’t work, can’t walk far, can’t lift anything heavy, nevermind run nor ride a bike. He’s on food stamps and is struggling to pay his mortgage now that he’s gone through his savings and the short-term disability he had through his employer. He has sold his motorcycle and his car. He recently liquidated his Roth IRA.
Thankfully, another program provided through his former job allows him to pay $80 a month for health insurance, which will run through another year. But even with medical insurance, medical bills still cost thousands and thousands of dollars.
If his journey has been wrenching, there also has been joy. Jenn has been at his side, sharing his struggle. They married this past July 18 in a perfect ceremony on a beautiful day.
And Gelhar is grateful for the support of family and friends.
Bhola, who has grown close to the couple, called Jenn’s love and commitment remarkable.
“For me, this is a miracle of humanity,” he said.
Gelhar knew his heart was deteriorating further when his body started to retain water days before the wedding ceremony. It was Bhola who recommended he go to Germany for stem-cell therapy.
“This is a young man who has not had a shot at life. I’m supporting him having a shot at life,” Bhola said of the man he described as “intelligent, articulate, who stands out in all the patients I encounter every day.”
The aim of going to the XCell-Center in Dusseldorf is to stabilize and perhaps strengthen his heart.
“The surprising part is how rapidly it’s happening, how quick he’s going downhill,” Jenn, 23, said. “We know he’ll need a transplant eventually. The goal is to put that out as far as we can because it’s not an easy surgery.”
The chance of dying within the first year of a transplant surgery is 15 percent. The chance of surviving a heart transplant for 10 years is just 50 percent.
And even if all goes well, he’ll eventually need another heart 10 to 15 years later.
“It just progressively gets more risky,” Jenn said.
So the young couple, both of whom are attending Whatcom Community College, have pinned their hopes on the medical procedure in Germany. There, doctors will take Gelhar’s own stem cells, which have the ability to evolve into other types of cells, from the bone marrow in his hip, process them to become heart-muscle cells, then inject those cells into his coronary arteries, Bhola explained.
“Then we see how his heart responds,” the doctor added.
Gelhar said he’s glad for the chance to do something, instead of just waiting to get sicker.
“This is the first time in two years where I’ve felt any kind of hope,” he said. “It’s been a rough couple of years.”
The procedure is not offered in the U.S. It could be in a couple of years, Bhola said, but Gelhar can’t wait.
It’s also not covered by his health insurance.
So Gelhar is turning to the community for help — something unfamiliar to him not so long ago.
“I get nervous,” he said. “I don’t like asking for help because I’m so used to being able to do everything myself.”
TO DONATE
An account has been set up for Bellingham resident Erik Gelhar, who is trying to raise $100,000 for a medical procedure in Germany in the hope of stabilizing his heart.
Donations may be made to The Erik Gelhar Donation Fund, Account No. 283726, at Whatcom Educational Credit Union branches. Or send them to the credit union at P.O. Box 9750, Bellingham, WA 98227.
Reach KIE RELYEA atkie.relyea@bellinghamherald.com or call 715-2234.
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